I have been using social media as a tool since 2015 when I re-started my small business, The Next Step (www.thenextstep1234.com) - I started using Twitter and Instagram along with blogging but I never really "met" people through social media except for occasionally, someone would click and hire me from my social media outreach. The lack of that happening more than occasionally is why I am currently looking for a Corporate job life-is-change-or-how-i-decided-to-go-back-to-corporate-america.html.
With my breast cancer advocacy and general plot twist sharing, I am making real connections - people who have walked my walk or walked a different path in this world of cancer and it is amazing. I know I might not meet some of these folks in real life, but I feel like I know them almost better than people who I see in real life. They get me. They know what it is like to hear the words, "You have cancer." and to pull yourself up and deal with it in whatever way it is that you deal. And each of us deals differently but most of us gravitate to sharing our story for the main reason of helping others.
On Monday nights, some of my circle I am making for myself "meet" on Twitter using the hashtag #BCSM. It is an open, amazing thing and I try to always make it. For like 2 weeks in a row, my kids were off on a Monday and I mentally thought it was a Sunday and missed it.
I hate when I miss it. During our session, we gab about life, pets, advocacy and breast cancer. We are a mix of doctors, patients, ex-patients, caregivers, male, female, etc. It is a place to feel at home - no judgement just a weekly "meeting" done via 140 characters.
I have to say using social media now is like an extension of the girls I text with in real life. It is another layer of me - more than meets the eye, people around the world just sharing the truth that exists for us. We are all trying to exist in the time between -we know we have / had cancer and now we wait for a cure or to be cured. For my stage 4 sisters, they need a lot more and that is why I recommend thinking before you pink. Look for charities that do more with their dollar like www.metavivor.org and others that focus on stage 4 as those findings will flood down to us in the "earlier" stages.
As someone who is Stage 3A, I know how lucky I am because as I say all the time, with cancer, it can always be worse. I also recognize that cancer is tricky and just because any of us are diagnosed and treated, that does not mean that long term we are "ok" this is our new reality scanziety, FU appointments and meds. Lots of meds- the-new-reality-of-life-post-cancer-diagnosis.html
This is what I do in the time between, though. Make new friends, push my envelope on what I ever thought I would share and just being me. Thanks for being on my plot twist with me either via Twitter, Instagram or right here on my blog! Thanks!!
The Time Between Is, INC is a 501(c)(3) corporation - help us reach our goals of launching #balanceaftercancer
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